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Fresh Mud

A blog about living with FSH muscular dystrophy. Questions?

Post 7 of 46

A bit of my recent history

Friday 15th May, 2020

When I came to this neurological centre in Gloucester back in December 2014, it was for respite and only supposed to be for a few months, but after being here for a while I asked if I could stay. I felt really safe here and was looking to move away from where I was living at the time anyway. I was surprised and pleased when my funders said yes with almost no question; my family asked me if I was sure that I wanted to live in a home rather than my own home, but I assured them that it would be a good thing for me and for my health.

At the time I was living alone in a bungalow in Kidderminster and had been there for 14 years; I moved in with Nicky (my partner) but, sadly, she passed away in 2012 after succumbing to cancer. I had moved to Kidderminster to be with her and no longer had a reason to stay, especially in a house that did nothing but remind me of what I had lost.

I was having good care at home with carers from an agency calling in several times a day, and overnight care from a different agency. The problem was that I was spending more time alone than I liked and just wasn’t really looking after myself as well as I should have been. Being here in this home, and being surrounded by carers 24 hours a day, gave me an enormous feeling of safety; I was also getting the therapy I needed and just having people there to talk to helped immensely.