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Fresh Mud

A blog about living with FSH muscular dystrophy. Questions?

Post 40 of 45


Friday 18th November, 2022

I am a creature of habit and I like routine. Maybe it’s a symptom or consequence of my (undiagnosed) ADHD, but I’ve been like it as long as I can remember.

Over the years I have had many “loose” routines, but in the last 15 years or so, since I’ve started having care, I have set myself routines that have important function; things like having regular physiotherapy, pressure relief for certain areas of my skin, and other things that take care of my health.

My current morning routine has been set for around 12 months and I see no immediate need to change it.

My alarm is set for 8:15am and I have breakfast pretty much as soon as I am awake. I like to have personal care as soon as I can after that, and then I am placed on my side for pressure relief as I sleep exclusively on my back; this is my favourite time of the day because: a) I am clean, b) I have a full belly, and c) I get to go back to sleep for a couple of hours!